gilenya

Seniors class is the perfect pace for me! 😬 #wearestrongerthanms #msfighter #multiplesclerosis #gilenya

This is the first #MS drug I was started on. I took it for one year and my neurologist had to stop it after my #relapse . If you are on #gilenya or your doctor is planning to start you on it, this is what you need to know: 1. It acts by decreasing the #lymphocyte count in your #blood thus preventing them from attacking the #myelin. Lymphocytes are a group of white blood cells in charge of fighting #viral infections. 2. Efficacy is 50% in reducing relapses compared to 30% for #interferons. 3. It is taken as one tablet daily 4. Before taking the medication, you need to do #CBC, #liver function test, #ECG, #eye exam by a neurophthalmologist. 5. You need to be monitored in a medical centre for 6 hours after the first dose as some patients might have slowing of their #heart_rate with the first dose. 6. Side effects are not serious and include: mild increase in liver enzymes, repeated infections, #hair_loss and #macular edema. 7. Blood examination should be repeated every 3 months and an eye exam every 3- 6 months. Overall, good drug but need to monitor for side effects. #الجيلينيا هو اول دواء ام اس وصفه الطبيب لي. استمريت بأخذ هذا الدواء لمدة سنة حتى أصبت بانتكاسة ثم نصحني الطبيب المعالج بإيقاف ليبدأ دواء اخر. اذا كنت تاخذ الجيلينيا او نصحك طبيبك باخذه، فهذا ما تحتاج ان تعرفه عن هذا الدواء: ١. يعمل الجيلينيا على خفض الخلايا #اللمفاوية بالدم و بالتالي منعها من مهاجمة #المايلين. الخلايا اللمفاوية هي مجموعة من خلايا #الدم البيضاء تختص بمكافحة الالتهابات الفيروسية . ٢.كفاءة الجيلينيا في منع الانتكاسات تصل الى ٥٠% مقارنة بالانتيرفيرون التي تصل كفاءتها الى ٣٠% في منع الانتكاسات. ٣. الدواء عبارة عن حبة واحدة تؤخذ يوميا عن طريق الفم. ٤. قبل البدء بأخذ الدواء، تحتاج إلى فحص الدم الكامل، وظائف الكبد، عمل تخطيط #قلب و يجب فحص #العين عند طبيب عيون مختص باعصاب العين. ٥. يجب مراقبتك في مركز طبي لمدة ٦ ساعات بعد الجرعة الأولى حيث ان بعض المرضى يعانون من تباطؤ في ضربات القلب مع الجرعة الأولى. ٦. الآثار الجانبية ليست خطيرة وتشمل: زيادة معتدلة في انزيمات الكبد ، والالتهابات المتكررة خاصة الفيروسية، وتساقط الشعر والضمور البقعي في العين. ٧. يجب تكرار فحص الدم كل 3 أشهر وفحص العين كل 3 إلى 6 أشهر. بشكل عام ، هو دواء جيد ولكن تحتاج إلى المتابعة الدورية لرصد للآثار الجانبية.

I order a lot of stuff for my daycare and my family online. As a result, I know my UPS guy well. He has the same beautiful personality and looks as one of my brother in laws, Curt. We are always happy to see each other, but his compassion and excitement towards me on the days he hands me my monthly box of my MS medication is SO endearing! #thisisms #msstrong #ms #graceunknown #ups #upsguy #upsguyknowsmyname #gilenya

Estudos indicam que a atividade antioxidante das antocianinas, presentes no Repolho Roxo, ajuda a evitar esta doença degenerativa (Alzheimer). A vitamina K também tem sido associada à prevenção Alzheimer, pois participa da síntese de esfingolipídios, lipídeos que são constituintes da bainha de mielina (envoltório que protege os neurônios). Assim como no Alzheimer, o repolho roxo também traz benefícios para o paciente de EM por atuar na mielina, e sem contar que é uma delícia na salada e cozido! Fonte: http://www.mundoboaforma.com.br #esclerose #esclerosis #esclerosemultipla #multiplesclerose #sclerosis #sclerose #cronicdisease #nutricao #nutricion #autoimunedisease #autoimune #diagnostico #diagnostic #desmielinizante #disease #doencadegenerativa #degenerativediscdisease #food #gilenya #healthyfood

Oooh goody I got a letter.. oh they just want my blood. The joys of MS . . . . #bloodtest #ms #multiplesclerosis #ohjoy #fingolimod #gilenya #itsthattimeagain

#multiplesclerosis #imafighter #msawareness #twoyearsago can’t believe it’s been that long already I need some advice on starting treatment it’s time #ocrevus #rebif #gilenya #advice #ms #msadvice

Day27 #gilenya #fty #fingolimod checking result&me. Consegna #cartadeldonatore al #t-rex ECG perfetto, ematici 👍🏻en bola ✌🏻 2 scatole di farmaco a casa equivalenti a 2 mesi di terapia, un bottino pari a quasi 6k€..2 mesi che se vanno come spero, terminano questi 7, passati dentro e fuori dall ospedale! 2 mesi di pace, stop e niente menate! #sm #smsucks #sclerosimultipla #multiplesclerosis #fuckms #newtherapy #vincoio #nonarrendersimai #nonsimollauncazzo

Hey MS Peeps!! I just checked my Inbox! I have been MIA! I moved to Charleston, SC!! It has been amazing! I of course chose a house with a million stairs! I know crazy for a person with MS to do that! Well I am crazy and I plan to keep on stepping! UPDATE: as always the summer heat is killing me!!! Numbness and extreme fatigue. I joined a new gym trying to keep on stepping. I have gained a ton of weight! I go to my doctor at the end of month to address that! I need more will power. One of my medications is making me so hungry all the time to the point I feel nauseous 🤢 #wearestrongerthanms #msfighter #multiplesclerosis #gilenya

YASSSS FINALLY!!! I have meds that WORK!!! Having Multiple Sclerosis has been a journey and I am so happy that #gilenya actually works!! After 7 months of not being able to workout, to have energy to, I walked on my treadmill for an hour straight!! With help from #vegaone and my #vbelt of course! Here comes the exercise posts!! 😁😁😁 P.S. LOOK SISSY I DID IT! @marilyn915 #msfighter #healthylifestyle #fitfam #fitspo #fitchick #healthy #myjourney #exercise #gelv #goals #nevermissamonday #mswarrior #curves #waisttraining #athomeworkout

Suco de laranja, espinafre e Fígado, parece aquele monte de alimento que éramos obrigados a ingerir na infância, mas não.... Esses alimentos são importantes para a regeneração celular. O suco é tranquilo.... Os demais vão depender dos temperos e de quem esta cozinhado, pelo menos para mim!  Fonte:https://sites.google.com/site/welsonlemos/fitness-cerebral #esclerose #esclerosis #esclerosemultipla #multiplesclerose #medicine #nutricao #food #awareness #autoimune #autoimunedisease #diagnostico #desmielinizante #doencadegenerativa #brazil #cronicdisease #gilenya #hope #life

Justo hoy hace 3 años ✨ No entendía cómo había llegado a la clínica, pero tenía la sensación de que iba a descubrir muchas cosas, seguro los que quisieron ver lo mejor de mi se acuerdan (gracias❤️). Rarísimo todo, era mi propio cuerpo el que estaba alterado hasta el punto de atacarme, pero entonces solo necesitaba encontrar la forma de estar en calma 🙄 de aprender a vivir distinto para que mi vida fuera compatible con esta condición 🌸🌱. Sentir miedo a no poder caminar, no ver, no tener la misma energía de antes y partir con un tratamiento que me hacia doler el cuerpo fue triste, y difícil también para los que se involucraron, pero gracias a su apoyo incondicional me di cuenta que solo hacía falta conocer a alguien que llevara bien la enfermedad para que yo pudiera hacer lo mismo. El aprender a conocerme de verdad fue duro pero finalmente me enseñó cómo es que se vive mejor. Nunca me atreví a leer sobre qué se trataba la EM pero no hizo falta, hace unos días llego a mi el libro adecuado y de alguien muy inesperado 🎁😊 (algunas cosas tardan pero llegan)☀️. Me siento muy afortunada y espero poder algún día retribuir de alguna forma, por ahora al menos ojalá las fotos de algunos momentos de mi vida demuestren que no hay nada que finalmente con esclerosis múltiple no se pueda hacer🍍 . . . #esclerosismultiple #autoinmune #multiplesclerosisawereness #multiplesclerosis #rebif #interferon #gilenya #fingolimod #avonex #autoimmunedisease

Eine Windeltorte für eine Freundin die im Winter ein Baby bekommt, von mir und @_nstsy Da sie das Geschlecht vorher nicht wissen will haben wir es neutral gehalten. Ein bisschen blau, ein bisschen rosa, ansonsten eher grau. Es echt Spaß gemacht sie zu basteln und wir hoffen sie gefällt ihr. 💙💖 #baby #windeltorte #diapercake #windeln #love #friends #ms #msfighter #multiplesklerose #multiplesclerosis #nurse #gilenya #fatigue #krankenschwester

I was in work the other day when I saw I had a missed called from the neurology unit,I knew it was related to my recent blood tests that I have every three months to keep track of gilenya. When I finally got back in touch with them I was imagining the worst. To my relief it was just to tell me I’m very low on B12 and anemic and that I would have to have my bloods redone. The relief 🙏 This came as no surprise as I’ve had anemia on and off for as long as I can remember. I have been vegetarian for the last 3 years and have never been a fish eater however something had to change so last night I had my first pescatarian meal of cod and veggies and I’m back on my love iron supplements ☺️ healthy eating is something I’ve always struggled with but now I’m going to make a real effort to improve my diet and take better care of my body. A lesson has been learnt! ☺️🐠🥦 #ms #multiplesclerosis #rrms #gilenya #iron #vitamind #vitaminddeficiency #chronicillness #happy #greatful

Gilenya 💊⠀ I’m still waiting on the doctors decisions about whether I need to switch to Lemtrada. It can take months. But I like Gilenya so the wait is not so bad. New MRI in August will help them make the final decision! 🍀⠀ If you don’t know what I’m talking about then go read my latest blogpost- link in bio! I’ve also made an entire blogpost dedicated to the pill box you see here - so a lot of fun reading ahead 🤓⠀ ...⠀ #gilenya #medication #healthy #healthymind #healthyliving #ms #mssucks #msfamily #mswarrior #msfighter #msawareness #mssociety #curems #strongerthanms #multiplesclerosis #invisibledisease #invisibleillness #chronicillness #chronicdisease #autoimmune #autoimmunedisease #autoimmunewarrior #spoonie #spoonielife #spooniewarrior